Bryan had a doctor’s appointment a couple weeks ago and his platelets went up to 50!! I was expecting them to be really low because he was getting a bloody nose every single day the whole week before Christmas! So we were pretty excited to hear those results!!
Also, I wanted to post a link to this blog that I LOVE!! It’s called 71 toes and she’s the daughter of Richard and Linda Eyre. I got the family economy ideas from their website, but I actually got the daily responsibility chart idea from her blog and she just happened to post about it today so here’s her blog if you want to check it out 71 Toes I get a lot of really good ideas from her!!
Showing posts with label ITP. Show all posts
Showing posts with label ITP. Show all posts
Friday, January 11, 2013
Friday, November 2, 2012
A funny bruise
Bryan got a bruise with petechiae after getting hit with a baseball during a scrimmage last weekend.
Thursday, October 20, 2011
What is ITP?
When I took the pictures of Bryan's bruises on Tuesday night, he was just wearing his underwear but I cropped them so I could post a few pictures. He has so many more bruises now. It's so sad!
This is his left leg.
This is his back and you can kind of see the little red spots he has there.
And these are both of his arms
Here's some good information I read about what ITP is. Here's the link to the website I found it on if you want to read more about it. I'm just copying and pasting the overview here.
Immune thrombocytopenic purpura (ITP) is a bleeding disorder. In ITP, the blood doesn't clot as it should. This is due to a low number of blood cell fragments called platelets (PLATE-lets) or thrombocytes (THROM-bo-sites).
Platelets are made in your bone marrow along with other kinds of blood cells. They stick together (clot) to seal small cuts or breaks on blood vessel walls and stop bleeding.
Without enough platelets, bleeding can occur inside the body (internal bleeding) or underneath or from the skin (external bleeding).
Overview
The term "thrombocytopenic" (throm-bo-cy-toe-PEE-nick) means the blood has a lower than normal number of platelets.
The term "purpura" (PURR-purr-ah) refers to purple bruises caused by bleeding from small blood vessels under the skin. People who have ITP often have bruises that appear on the skin or on the mucous membranes (for example, in the mouth).
People who have ITP also may have bleeding that causes tiny red or purple dots on the skin. These pinpoint-sized dots are called petechiae (peh-TEE-kee-ay). Petechiae may look like a rash.
People who have ITP also may have nosebleeds, bleeding from the gums during dental work, or other bleeding that's hard to stop. Women who have ITP may have menstrual bleeding that's heavier than normal.
A lot of bleeding can cause hematomas (he-mah-TO-mas). A hematoma is a collection of clotted or partially clotted blood under the skin. It looks or feels like a lump.
Bleeding in the brain as a result of ITP is very rare, but can be life threatening if it occurs.
In most cases, an autoimmune response is thought to cause ITP. Normally, your immune system helps your body fight off infections and diseases. But if you have ITP, your immune system attacks and destroys its own platelets. The reason why this happens isn't known.
ITP can't be passed from one person to another.
Types of Immune Thrombocytopenic Purpura
The two types of ITP are acute (temporary or short-term) and chronic (long-lasting).
Acute ITP generally lasts less than 6 months. It mainly occurs in children—both boys and girls—and is the most common type of ITP. Acute ITP often occurs after a viral infection.
Chronic ITP lasts 6 months or longer and mostly affects adults. However, some teenagers and children do get this type of ITP. Chronic ITP affects women two to three times more often than men.
Treatment depends on the severity of bleeding and the platelet count. In mild cases, treatment may not be needed.
Outlook
For most children and adults, ITP isn't a serious or life-threatening condition.
Acute ITP in children often goes away on its own within a few weeks or months and doesn't return. In 80 percent of children who have ITP, the platelet count returns to normal within 6 to 12 months. Treatment may not be needed.
For a small number of children, ITP doesn't go away on its own and may require further medical or surgical treatment.
Chronic ITP varies from person to person and can last for many years. Even people who have severe forms of chronic ITP can live for decades. Most people who have chronic ITP can stop treatment at some point and maintain a safe platelet count.
This is his back and you can kind of see the little red spots he has there.
And these are both of his arms
Here's some good information I read about what ITP is. Here's the link to the website I found it on if you want to read more about it. I'm just copying and pasting the overview here.
Immune thrombocytopenic purpura (ITP) is a bleeding disorder. In ITP, the blood doesn't clot as it should. This is due to a low number of blood cell fragments called platelets (PLATE-lets) or thrombocytes (THROM-bo-sites).
Platelets are made in your bone marrow along with other kinds of blood cells. They stick together (clot) to seal small cuts or breaks on blood vessel walls and stop bleeding.
Without enough platelets, bleeding can occur inside the body (internal bleeding) or underneath or from the skin (external bleeding).
Overview
The term "thrombocytopenic" (throm-bo-cy-toe-PEE-nick) means the blood has a lower than normal number of platelets.
The term "purpura" (PURR-purr-ah) refers to purple bruises caused by bleeding from small blood vessels under the skin. People who have ITP often have bruises that appear on the skin or on the mucous membranes (for example, in the mouth).
People who have ITP also may have bleeding that causes tiny red or purple dots on the skin. These pinpoint-sized dots are called petechiae (peh-TEE-kee-ay). Petechiae may look like a rash.
People who have ITP also may have nosebleeds, bleeding from the gums during dental work, or other bleeding that's hard to stop. Women who have ITP may have menstrual bleeding that's heavier than normal.
A lot of bleeding can cause hematomas (he-mah-TO-mas). A hematoma is a collection of clotted or partially clotted blood under the skin. It looks or feels like a lump.
Bleeding in the brain as a result of ITP is very rare, but can be life threatening if it occurs.
In most cases, an autoimmune response is thought to cause ITP. Normally, your immune system helps your body fight off infections and diseases. But if you have ITP, your immune system attacks and destroys its own platelets. The reason why this happens isn't known.
ITP can't be passed from one person to another.
Types of Immune Thrombocytopenic Purpura
The two types of ITP are acute (temporary or short-term) and chronic (long-lasting).
Acute ITP generally lasts less than 6 months. It mainly occurs in children—both boys and girls—and is the most common type of ITP. Acute ITP often occurs after a viral infection.
Chronic ITP lasts 6 months or longer and mostly affects adults. However, some teenagers and children do get this type of ITP. Chronic ITP affects women two to three times more often than men.
Treatment depends on the severity of bleeding and the platelet count. In mild cases, treatment may not be needed.
Outlook
For most children and adults, ITP isn't a serious or life-threatening condition.
Acute ITP in children often goes away on its own within a few weeks or months and doesn't return. In 80 percent of children who have ITP, the platelet count returns to normal within 6 to 12 months. Treatment may not be needed.
For a small number of children, ITP doesn't go away on its own and may require further medical or surgical treatment.
Chronic ITP varies from person to person and can last for many years. Even people who have severe forms of chronic ITP can live for decades. Most people who have chronic ITP can stop treatment at some point and maintain a safe platelet count.
Bryan
About 2 weeks ago I noticed that Bryan had a lot of bruises on his legs and one on his side. He said that he play fights at school all the time so Derek talked to the school about it. We figured they had to be play fighting really hard in order for him to get bruises like that. I started asking Bryan every few days what he did at recess to make sure they weren’t play fighting anymore.
On Monday after dinner, Bryan told me he had little red spots on his skin. I told him it was probably just eczema and told him to take a shower and then I would look at it and he could put lotion on. He had the spots all over his feet, legs, stomach and back. He also had a whole lot more bruises that I hadn’t seen before. So I asked him if he had been play fighting at school lately. He said no.
After he went to bed, I looked up bruising and red spots online and decided that he needed to go to the doctor. I made an appointment Tuesday for him to be seen on Friday. On Tuesday night I saw a few more bruises on Bryan so I took some pictures and emailed them to Rachelle to show Lew, my father in law once removed(he he). He’s some kind of doctor so I asked him if those red spots were petechiae which was something I read about online. He emailed me back and told me that that it did look like petechiae to him and he thought that Bryan probably has ITP(Immune Thrombocytopenic Purpura). He explained it a little bit to me and told me he should get a CBC and be started on treatment as soon as possible.
On Wednesday morning, Derek saw more bruises on Bryan so I called the doctor and asked if they could see him that day. Derek took him in and the doctor agreed that he probably has ITP and sent him to get a CBC. We got the results back about 3 hours later and the doctor called and said he needs to go to the hospital right away for a platelet transfusion. His platelet count was at 2,000. The normal range is 150,000-450,000. So that’s why he was bruising everywhere.
While Derek and Bryan were on their way to the hospital, the doctor called again and said that he just talked to a blood specialist in Oakland and she didn’t want him to have the platelet transfusion so he told him to just come to the office instead.
He told Derek that he thought it was ITP but because they weren’t certain, the blood specialist didn’t want him to have the transfusion and she would fly out here by next Tuesday to see Bryan.
The doctor told Derek that Bryan would need another CBC on Monday. He said that Bryan needs to take it easy and be very careful so he doesn’t keep bruising. He pretty much gets bruises or red spots from anything touching him. The doctor stressed that anything on his head or stomach is cause for concern and to call him right away if he bumps his head or anything happens to either of those places.
Bryan ended up getting a bruise on his forehead that evening and then a little while later, we noticed that it had started swelling. He started getting ready for bed and then his nose started bleeding. It stopped after 10-15 minutes and then about 15 minutes later, it started again. Derek called the doctor because of the nose bleeds and the bump on his forehead and the doctor said he needs to go to the emergency room
When we got there, the on-call doctor had already talked to our doctor and they wanted to do another CBC and a cat scan. Poor Bryan had to get poked 3 times to get his blood!! The CAT scan came back negative for anything but we were still waiting on the CBC results. So they admitted him to the hospital.
The doctors think it’s ITP but they’re a little thrown off because his white blood cell count is low. And that’s not normal with ITP. They started treating him for ITP this morning with an iv ig and when he goes through 3 bottles of the medication, they’ll wait a few hours and then do another CBC. If his platelet count has gone up then he should be able to go home.
So right now we’re just waiting on that. Bryan is doing a lot better today than he was yesterday and he was happy the whole time we were there visiting him this morning. I really hope that the medicine works and he gets to come home soon! I will post again when I know more.
On Monday after dinner, Bryan told me he had little red spots on his skin. I told him it was probably just eczema and told him to take a shower and then I would look at it and he could put lotion on. He had the spots all over his feet, legs, stomach and back. He also had a whole lot more bruises that I hadn’t seen before. So I asked him if he had been play fighting at school lately. He said no.
After he went to bed, I looked up bruising and red spots online and decided that he needed to go to the doctor. I made an appointment Tuesday for him to be seen on Friday. On Tuesday night I saw a few more bruises on Bryan so I took some pictures and emailed them to Rachelle to show Lew, my father in law once removed(he he). He’s some kind of doctor so I asked him if those red spots were petechiae which was something I read about online. He emailed me back and told me that that it did look like petechiae to him and he thought that Bryan probably has ITP(Immune Thrombocytopenic Purpura). He explained it a little bit to me and told me he should get a CBC and be started on treatment as soon as possible.
On Wednesday morning, Derek saw more bruises on Bryan so I called the doctor and asked if they could see him that day. Derek took him in and the doctor agreed that he probably has ITP and sent him to get a CBC. We got the results back about 3 hours later and the doctor called and said he needs to go to the hospital right away for a platelet transfusion. His platelet count was at 2,000. The normal range is 150,000-450,000. So that’s why he was bruising everywhere.
While Derek and Bryan were on their way to the hospital, the doctor called again and said that he just talked to a blood specialist in Oakland and she didn’t want him to have the platelet transfusion so he told him to just come to the office instead.
He told Derek that he thought it was ITP but because they weren’t certain, the blood specialist didn’t want him to have the transfusion and she would fly out here by next Tuesday to see Bryan.
The doctor told Derek that Bryan would need another CBC on Monday. He said that Bryan needs to take it easy and be very careful so he doesn’t keep bruising. He pretty much gets bruises or red spots from anything touching him. The doctor stressed that anything on his head or stomach is cause for concern and to call him right away if he bumps his head or anything happens to either of those places.
Bryan ended up getting a bruise on his forehead that evening and then a little while later, we noticed that it had started swelling. He started getting ready for bed and then his nose started bleeding. It stopped after 10-15 minutes and then about 15 minutes later, it started again. Derek called the doctor because of the nose bleeds and the bump on his forehead and the doctor said he needs to go to the emergency room
When we got there, the on-call doctor had already talked to our doctor and they wanted to do another CBC and a cat scan. Poor Bryan had to get poked 3 times to get his blood!! The CAT scan came back negative for anything but we were still waiting on the CBC results. So they admitted him to the hospital.
The doctors think it’s ITP but they’re a little thrown off because his white blood cell count is low. And that’s not normal with ITP. They started treating him for ITP this morning with an iv ig and when he goes through 3 bottles of the medication, they’ll wait a few hours and then do another CBC. If his platelet count has gone up then he should be able to go home.
So right now we’re just waiting on that. Bryan is doing a lot better today than he was yesterday and he was happy the whole time we were there visiting him this morning. I really hope that the medicine works and he gets to come home soon! I will post again when I know more.
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